14 days left to go

That's right we are now quickly approaching the Achromatopsia Convention!! Hope that everyone has there travel itinerary's squared away and are getting excited!!

The Agenda for August 13th and 14th have been finalized and updated on the website. CLICK HERE to go to the site or view the schedule below.

	Achromatopsia Convention 2009
	August 13th-14th
	Agenda
August 13th
Times/Location	Activity
9:00 AM- Hyatt Hotel Lobby	Shuttle Service from the Hyatt to Chicago Lighthouse will be available starting at 9:00 AM
9:40 AM-10:00 AM Chicago Lighthouse Multipurpose Room (Second Floor)	Registration
10:00 AM-10:30 AM Multipurpose Room	Introduction
10:30 AM-11:00 AM Multipurpose Room	Tour of the Chicago Lighthouse
11:00 AM-11:30 AM Multipurpose Room	Service and Benefits Available To Us
11:30 AM-12:30 PM Multipurpose Room or Cafeteria	Lunch
12:30 PM-1:30 PM Multipurpose Room	Adaptive Technology
1:30 PM – 2:30 PM Multipurpose Room	Speaker: Kathryn Mack Topic: Topics in Self-Advocacy
2:30 PM - 4:20 PM Multipurpose Room	Open Floor-Work, School, Social Life Etc.
4:25PM – 5:20 PM Multipurpose Room	Speaker: Mark Wilkinson Topic: General introduction to achromatopsia physiology, the genetics of achromatopsia, and forthcoming publicly-available genetic testing for achromatopsia
5:25 PM	Departures
8:30 PM-9:30 PM Meet in Hyatt Hotel Lobby	Participate in a scientific survey to answer the question: Do achroma-people really see better in the dark than normals? Hosted by Dave Goggin.
August 14th
Times/Location	Activity
8:30 AM- Hyatt Hotel Lobby	Shuttle Service from the Hyatt to Chicago Lighthouse will be available starting at 8:30 AM
9:10 AM-9:20 AM Multipurpose Room	Introduction of guest speakers
9:20 AM-10:25 AM Multipurpose Room	Speaker: William Hauswirth Topic: Introduction to theory of gene therapy, its potential applicability of achromatopsia, caveats and limitations, and possible outcomes
10:30 AM-11:05 AM Multipurpose Room	Speaker: Andras Komaromy Topic: Achromatopsia genes and gene therapy research in animal models, lessons learned, and implications for human treatments.
11:10AM – 11:40 AM Multipurpose Room	Speaker: Gene Grindstaff (via video) Topic: Political advocacy for achromatopsia treatment and research funding
11:40 AM –12:10 PM Multipurpose Room	Mainstreaming Communication
12:10 PM – 1:20 PM Multipurpose Room or Cafeteria	Lunch
1:30 PM-2:55 PM Multipurpose Room	Speakers: Sue Washer and Jeff Chulay Topic: Corporate perspectives on developing human achromatopsia gene therapy and thoughts on clinical trials process and planning
3:00 PM-3:30 PM Multipurpose Room	Speaker: TBA Topic: Ongoing research into the physiology and mechanism of achromatopsia, retinal imaging and recording technologies, clinical perspectives
3:30 PM - 4:00 PM Multipurpose Room	Wrap Up Discussion
4:00 PM	Departures