With the rarity of Achromatopsia finding a cure seems impossible! The wonderful thing is that some scientists and their labs have taken interest in Achromatopsia or other vision impairments that may have similar cures.
Now we may have greater knowledge about Achromatopsia than many PHYSICIANS, but very few of us have a deep understanding of scientific terms, definitions, and processes.
Here's where the Achromatopsia Convention will come in handy: Some of the researchers who will be voluntarily speaking will put things in layman's terms. We may not be looking into their career, but having an understanding of what they are doing may help us return the favor.
There has to be a bridge built between those who deal with Achromatopsia on a daily basis and those interested in research and development. Just think, what if researchers are missing a key factor, that is abundantly obvious to those with Achromatopsia; and we have no idea that this information is important.
On the other hand, even if a cure is never found, researchers will have the tools to create useful aids. They just need to hear from us and possibly take samples for advanced testings.
Just think of the greater opportunities both sides will gain through understanding each other.
